Patients Helping Patients
Often dystonia and Parkinson's Disease patients feel isolate and alone. The Foundation believes that a strong support network is critical for patients and their families. To connect others who have been touched by these movement disorders, simply browse the blogs below.
The Untold Stories of Dystonia (dystonia)
http://rebeccashark.wordpress.com
Amy P. Smith (torsian dystonia)
http://amypsmith.wordpress.com
Battery Powered Person (DBS)
http://patbrogan13.wordpress.com
Bekah the Ballerina (early-onset dystonia)
http://pittsburghdystonia.org/rebekah
Blissful Blog (dystonia)
http://ctrgroove.wordpress.com
Brand New Day (dystonia)
Childhood Onset Dystonia (early-onset dystonia)
Chronicles of a Dystonia Muse (early-onset generalized dystonia)
Confessions of a Girl in Hiding
http://chantel.livejournal.com/
Dystonia & Functional Movement Disorder Sufferer’s Blog (multiple forms)
http://dystoniasufferer.wordpress.com/
Dystonia and Me (facial dystonia)
http://dystoniaandme.wordpress.com/
Dystonia Daughter (father has dystonia)
http://dystoniadaughter.blogspot.com
Dystonia Girl (dystonia)
http://dystoniagirlblog.wordpress.com
Dystonia. Living in the Eye of the Tiger
http://www.squidoo.com/dystonia-information
Dystonia Mama (dystonia)
http://mommyhasamovementdisoder.blogspot.com
Dystonia the Devil
http://dystonia-the-devil.blogspot.com
Dystonie Treff Online (hemi-dystonia)
http://www.dystonietreffonline.de/english-version.html
Feeling Twisty (generalized dystonia)
http://feelingtwisty.wordpress.com
Homens De Bem (writer's cramp)
http://divanicio.wordpress.com
In The Blink Of An Eye (blepharospasm)
La Dystonie (dystonia - translated in English and French)
http://dystonia.blog4ever.com/blog/articled-cat-371346-396920-english_version.html
Little Writings (dystonia)
http://zeiramasil540.wordpress.com
Living With Dystonia (cervical dystonia)
http://lifewithdystonia.blogspot.com/
Living with Dystonia (dystonia)
http://www.anitarhoadeshenslee.blogspot.com
Matt Lawrence (early-onset)
http://mattyblaw.wordpress.com/
Musician's Focal Dystonia (musician's dystonia)
http://musicians-focal-dystonia.com
Musings of a Bionic Distance Runner (dystonia)
http://bionicrunner.blogspot.com
My Life with a Movement Disorder (dystonia)
http://mylifewithamovementdisorder.wordpress.com
My Life with Dystonia (dystonia)
http://lisariley00.wordpress.com
My Life with Dystonia (dystonia)
http://mylifewithdystonia.wordpress.com
Of Storms and Peace (dystonia)
http://ofstormsandpeace.wordpress.com
Pretty Pink Wings (dystonia)
http://nattiegamble.wordpress.com
Quest of the Nocturnal Baker (generalized dystonia)
http://questofthenocturnalbaker.blogspot.com
Rainy Day Friend (dopa responsive dystonia)
http://www.rainydayfriend/blogspot.com
Run Carrie Run! (dystonia)
Stronger than Dystonia (lingual dystonia)
http://strongerthandystonia.weebly.com
Studio Foxhaven (dystonia & Parkinson’s)
http://www.studiofoxhoven.com/
The Jolly Runner (generalized dystonia)
http://thejollyrunner.wordpress.com/
Walking Forward
http://forwardistheway.wordpress.com
A Soft Voice In A Noisy World – Making the Best of A Life with Parkinson’s Disease
http://pdpatient.wordpress.com/
Aging and Parkinson’s and Me
http://www.parkinsonsand5htp.blogspot.com/
Kaitlyn Roland: A Yogini With A PhD And A Passion To Help People Live Well With Parkinson’s Disease
http://kaitlynroland.wordpress.com/
Coffee With Pokie (active)
http://justpokietoo.blogspot.com/
Defeat Parkinsons
http://defeatparkinsons.wordpress.com
Disability – a dialogue with Parkinson’s and other diseases
http://dialoguewithdisability.blogspot.co.uk/
It Is What It Is! Zen and living with Parkinson’s Disease
http://tomspdblog.blogspot.com
LIM Yoga Blog
http://www.limyoga.com/wpblog/
Living Alone With Parkinson’s “Works4Me” (alternative approaches)
http://www.livingalonewithparkinsons.com/
Walking the UK in a Straight Line for Parkinson’s
http://longstraightwalk.wordpress.com/
My Life with Parkinson’s disease
http://www.mylifewithparkinsondisease.blogspot.com/
On & Off: The Alaska Parkinson’s Rag
http://offandonakpdrag.blogspot.com/
Parkinson’s Humor
http://parkinsonshumor.blogspot.com/
Parkinson’s in Balance and The Perky Parkie
http://www.parkinsonsinbalance.net/
Parkinson’s Journey…you are not alone
Positively Parkinson’s
http://positivelyparkinsons.blogspot.com/
Recently Diagnosed Blog
http://www.fyipd.org/recently-diagnosed-blog/
Shake, Rattle and Roll
http://katekelsall.typepad.com/my_weblog/
Shakin’ Not Stirred: Finding Perseverance Through Parkinson’s
http://shakin-not-stirred.blogspot.com
Shaky Paws Grampa
http://shakypawsgrampa.blogspot.com/
Studio Foxhaven (dystonia & Parkinson’s)
http://www.studiofoxhoven.com/
The Long Straight Walk
The PD Gardener
http://thepdgardener.wordpress.com
Vow For Parkinson
http://vowforparkinson.wordpress.com
Walking My Path With Parkinson’s
http://marian-pathwalk.blogspot.com/